Updates on Colin's seizures...

Man oh Man have we had some medical stuff going on with Colin lately.

Long story short, on February 21st, Colin was at school and had a Generalized Tonic Clonic (GTC) seizure lasting almost 5 minutes.  He has had an Epilepsy diagnosis since he was 5 years old, but had only had Absence Seizures up til now.  He was taken off all epilepsy medications in December following a normal EEG that was routinely done to check his seizure disorder.  It was likely that he would grow out of his seizures, so we were very relieved to know his EEG was normal in December.

Well, fast forward to a few days before his GTC.  He had been sick (which we later found out was Flu A), hadn't really eaten much and was very worn out, tired, etc.  The school nurse was called when the students in his class alerted his teacher (who had her back turned to the class writing on the board) that something was wrong with Colin.  He hit his head pretty good on something, we're not sure what since it was only witnessed by his classmates.  Nurse Jenny knew of his epilepsy diagnosis, and also that he had never had a GTC before, so she decided to call the ambulance.  

This earned him a ride to Children's Mercy downtown.  Thank goodness I work there, but it was a LONG wait for him to arrive via ambulance.  Brian was able to get to the school just before the ambulance left, and Grammie was able to get there sooner and be there for Colin while he was scared.

Brian sent me this picture from the ambulance - poor kid!

We got checked out in the ED (watching closely for a concussion which he luckily didn't have!) and was able to get a Neurology follow up appointment a few days later.

We are back on a couple medications to help with his seizures (ones that will cover both Absence and GTC seizures).  It takes 12 weeks to completely dose up on his meds, so we're making sure he stays as healthy as possible and gets plenty of sleep in the meantime.

That night, of course, we had some tickets to a Sporting KC Soccer game that Colin was SOOOO excited to go to.

We made the decision that it was okay for him to go, despite his eventful day.

He had a blast and we were delighted he was there

Colin with his friend CP

SKC won and they had a blast at the game!

A good finish to the end of a somewhat crummy day